Jordy's back at Doernbecher's ~

12/4

Jordy has finished his chemo infusion. Now we just wait for it to clear out of his body. He is a bit nauseaus, but the meds are taking care of most of it.The GI doctor visited Jordy today. She decided to do an endoscopy tomorrow. An endoscopy is when a small camera is sent down his throat into his stomach. Contrary to the name, it has nothing to do with the bottom end! It is a simple procedure that both Kevin and Kyle have had.This should let us know why Jordy is having such a hard time eating.Jordy and I had an interesting conversation this morning.
He was telling me that when he dreams, he usually has both of his legs. Only once he had a prosthesis.
We were wondering if there is a connection between the nerves that the were able to save and the dreams with his whole leg. We will have to ask. Another interesting thing is that if he is not looking at his foot and someone touches it, he feels it on the opposite side. If he is looking at his foot he feels it on the correct side.
One problem is that if he hits his foot on something and is not looking at it, he moves his leg the wrong way. I wonder if his brain will retrain in time.Most kids that have the rotationplasty are younger and less articulate than Jordy. It is very interesting. Today the doctors asked if Jordy would do some teaching about the rotationplasty. Jordy has learned a great deal, but we are all learning from him.


12/3

Jordy's break is officially over and we are back at Doernbecher's. Jordy passed his blood tests today and has started his chemo. He is stil having problems eating and drinking because of a sore spot in his esophougus.
The dietitician is getting in contact wiith a gastrologist. They would like to figure out this problem.
Jordy is a bit frustrated with the eating thing, because other than that he is feeling pretty good. During the last part of his break he went to the Central Linn-Kennedy basketball game and "played" football with some friends. Now it is back to the real world!
The hospital has a new database system. It is designed to save time and paper. The admission questions are halarious and very detailed. The questions can be very invasive and include things such as how many pairs of underwear did you bring? The really nice feature is a calculator that you can cick on if you lose count. Jordy and the nurse had a great time with comments on the data. For example, one question asked how your pain started. Jordy answered, "Well, when they cut ff my leg and reaatached it, it began to hurt". Jordy and the nurse laughed, and she entered that comment on the computer. Jordy's humor comes out in the strangest ways.
I think that is why he gets along with George so well!!